Haemophilia: The Bleeding Disorder

Haemophilia in India

📊 Prevalence
1:10,000

Males affected worldwide

👥 In India
~150,000

Estimated patients

🧬 Types
80% / 20%

Haemophilia A / B

💰 Cost
₹5-20L

Annual treatment per patient

The Mechanism

Clotting Simulation

Clotting Simulation Guide

Red Dots: Blood cells trying to escape.

White Mesh (Normal): Web that stops bleeding.

Haemophilia Mode: Mesh disappears. Bleeding continues.

🧬 Types & Causes

A

Haemophilia A

80% of cases

Missing: Factor VIII • Also called "Classic Haemophilia"

B

Haemophilia B

20% of cases

Missing: Factor IX • Also called "Christmas Disease"

X-linked inheritance: Mothers carry the gene, sons have 50% chance of inheriting. Daughters can be carriers.

🩸 Signs & Symptoms

🤕

Prolonged Bleeding

From cuts, injuries, surgery

🦴

Joint Bleeding

Knees, elbows, ankles

💪

Muscle Bleeding

Deep bruises, swelling

👶

In Infants

Unexplained bruises

🏃 Living with Haemophilia

✅ Safe Activities

  • • Swimming, Walking, Cycling
  • • Badm, Table Tennis, Golf
  • • Yoga, Stretching

⚠️ Avoid

  • • Contact sports (Boxing, Rugby)
  • • Motorcycle riding
  • • Aspirin & blood thinners

💉 Treatment Options

Factor Replacement

IV injections of Factor VIII or IX

Prophylaxis

Regular infusions 2-3x/week

Home Therapy

Self-administered after training

🤝 Support & Resources

🏥 Hemophilia Federation India

National helpline & support • www.hemophilia.in

💊 Ayushman Bharat

Government health insurance coverage

🚨 Emergency

Severe bleeding → Immediate medical attention

💬 Chat with Hemo